RESEARCH

Our research program spans clinical, technological, and patient-oriented domains. The lab’s projects integrate rehabilitation sciences, engineering, data science, and family engagement to improve the quality of life of children with musculoskeletal conditions.

Publications

To view all see:

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PubMed
Group of five people standing in front of a presentation screen at the EACD 2024 conference in Bruges, Belgium. The screen displays the conference theme, dates, and slogans about composing a new symphony and embracing challenging times and new collaborations.

Last 4 Years:

Names underlined identify the students and trainees, and names italicized represent *patient partners.
Patient partners share different types of expertise: clinical, policy, advocacy, and lived experience.

Araujo CRS, Hyer L, Sienko SE, Buckon C, Costa C, Benito DN, Donohoe M, Donlevie K, Emblin M, Fafara A, Sullivan JC, Dahan-Oliel N; AMC Registry Team members. Gross motor functional classification for arthrogryposis multiplex congenita: protocol for co-development involving public with lived and professional experience. Res Involv Engagem. 2025 Dec 16. doi: 10.1186/s40900-025-00827-8. Epub ahead of print. PMID: 41402879.

Zidan A, Snider L, Sions J, Donlevie K, Cirillo A, Pacey V, Dahan-Oliel N. Content validity of mobility measures in arthrogryposis multiplex congenita: engaging clinicians and people with lived experience. Front Rehabil Sci. 2025 Aug 4;6:1576267. doi: 10.3389/fresc.2025.1576267. PMID: 40831880; PMCID: PMC12358442.

Zidan A, Gabay D, Poirier SE, Grandisson M, Jacob S, Ouimet M, Julien-Gauthier F, Martin-Roy S, Lamontagne ME, Desmarais C, Dahan-Oliel N. In what contexts, how, and why do transition to adulthood interventions work for adolescents living with disabilities: A realist review. J Vocat Rehabil. 2025;0(0). doi: 10.1177/10522263251356223. Epub 2025 Jul 29.

Dahan-Oliel N, Cachecho S, Araujo C, Fąfara A, Lacombe F, Samargian A, Costa C, Donohoe M, Flanagan A, Kowalczyk B, Krakie C, Wagner L, Navalón C, Pacey V, Steen U, Walker M, Wong T, Bussières A. Consensus-based recommendations for the rehabilitation of children with arthrogryposis multiplex congenita: an integrated knowledge translation approach. Orphanet J Rare Dis. 2025 Apr 9;20(1):168. doi: 10.1186/s13023-025-03671-x. PMID: 40205440; PMCID: PMC11983950.

Nematollahi S, Hamdy RC, van Bosse H, Li J, Blanshay-Goldberg D, de Vries JIP, Dieterich K, Filges I, Bedard T, Haendel M, Torres MM, Robinson PN, Dahan-Oliel N. Human Phenotype Ontology Annotations for Rare Congenital Conditions: Application to Arthrogryposis Multiplex Congenita. Am J Med Genet A. 2025 Aug;197(8):e64067. doi: 10.1002/ajmg.a.64067. Epub 2025 Apr 3. PMID: 40176701; PMCID: PMC12226218.

Montpetit K, Rhalmi S, Lalumiere M, Dahan-Oliel N, Keshet D, Epstein D, Hamdy R. Satisfactory long-term functional and radiological outcomes following hip reconstructive surgery in children with cerebral palsy. J Pediatr Rehabil Med. 2025 May;18(2):110-119. doi: 10.1177/18758894251316072. Epub 2025 Mar 20. PMID: 40111898.

Hamdy R, Dahan-Oliel N. Recurrent Knee Flexion Contractures in a 10 Year Old with Arthrogryposis. In book: Limb Lengthening and Reconstruction Surgery Case Atlas (pp.631- 635). January 2025. DOI:10.1007/978-3-031-77359-4_334

Dahan-Oliel N, Hamdy R. Bilateral Congenital Vertical Talus and Dislocated Hips in a Child with Very Severe Arthrogryposis. In book: Limb Lengthening and Reconstruction Surgery Case Atlas (pp.605-609). January 2025. DOI:10.1007/978-3-031-77359-4_352

Hamdy R, Dahan-Oliel N. Simultaneous Correction of Hip and Knee Flexion Contractures in a 5 Year Old with Arthrogryposis. In book: Limb Lengthening and Reconstruction Surgery Case Atlas (pp.637-642). January 2025. DOI:10.1007/978-3-031-77359-4_348

Hamdy R, Dahan-Oliel N. Correction of Severe Foot Deformity in Arthrogryposis with Midfoot Osteotomy and Ilizarov Frame. In book: Limb Lengthening and Reconstruction Surgery Case Atlas (pp.915-918). January 2025. DOI:10.1007/978-3-031-77359-4_356

Hamdy R, Dahan-Oliel N. Synchronization of Surgical Interventions for Multiple Deformities in a Four Year Old with Arthrogryposis. In book: Limb Lengthening and Reconstruction Surgery Case Atlas (pp.643-646). January 2025. DOI:10.1007/978-3-031- 77359-4_338

2025

Lazarowitz R, Taqi D, Lee C, Boruff J, McBain K, Majnemer A, Bussières A, Dahan-Oliel N. Knowledge Translation Interventions to Increase the Uptake of Evidence-Based Practice Among Pediatric Rehabilitation Professionals: A Systematic Review. Phys Occup Ther Pediatr. 2025;45(2):119-152. doi: 10.1080/01942638.2024.2421854. Epub 2024 Nov 13. PMID: 39538172.

Nematollahi S, Rampakakis E, Amara M, Hamdy RC, Rauch F, Hyer LC, James MA, Altiok H, Raney E, Pellett J, Mielke C, Nossov SB, Tavukcu S, Giampietro PF, Dahan-Oliel N. Health-related quality of life in 205 children with arthrogryposis multiplex congenita. Qual Life Res. 2025 Jan;34(1):247-260. doi: 10.1007/s11136-024-03808-8. Epub 2024 Oct 22. PMID: 39436578.

Hanson JH, Majnemer A, Pietrangelo F, Dickson L, Shikako K, Dahan-Oliel N, Steven E, Iliopoulos G, Ogourtsova T. Evidence-based early rehabilitation for children with cerebral palsy: co-development of a multifaceted knowledge translation strategy for rehabilitation professionals. Front Rehabil Sci. 2024 Aug 7;5:1413240. doi: 10.3389/fresc.2024.1413240. PMID: 39169922; PMCID: PMC11335716.

McBain K, Dinh C, Haffar M, Steinberg E, Cachecho S, Bussières A, Dahan- Oliel N. (2024). Perspectives from clinicians and managers: facilitators and barriers to the uptake of rehabilitation guidance for children with arthrogryposis. Disability and Rehabilitation. 46(18): 4140–4156

Elfassy C, Araújo CRS, Dunn T, Cachecho S, Elekanachi R, Higgins J, Snider L, Dahan- Oliel N. Pediatric Performance-Based Outcome Measures for Upper Extremity Function: A Scoping Review and Linking to the International Classification of Functioning, Disability, and Health. Can J Occup Ther. 2024 Mar 28:84174241233513. doi: 10.1177/00084174241233513. Epub ahead of print. PMID: 38545664.

Nematollahi S, Dieterich K, Filges I, De Vries JIP, Van Bosse H, Benito DN, Hall JG, Sawatzky B, Bedard T, Sanchez VC, Navalon-Martinez C, Pan T, Hilton C, Dahan-Oliel N. (2024). Common data elements for arthrogryposis multiplex congenita: An international framework. Dev Med Child Neurol. 66(10): 1340-1347.

Ross-Lévesque É, Martin-Roy S, Julien-Gauthier F, Jacob S, Grandisson M, St-Pierre M-C, Dahan-Oliel N, Lamontagne ME, Desmarais C. (2024). Transition to adulthood of youth with disabilities: Mapping declared practices to recommended practices. Journal of Research in Special Educational Needs. 00: 1-13.

Elekanachi RU, Lajoie A, Tavukcu S, Snider LM, Dahan-Oliel N. (2024). The experience of caregiving for children with rare musculoskeletal conditions: a qualitative study in arthrogryposis multiplex congenita. Orphanet J Rare Dis. 19(1): 235.

Gargano MA, Matentzoglu N, Coleman B, Addo-Lartey EB, Anagnostopoulos AV, Anderton J, Avillach P, Bagley AM, Bakštein E, Balhoff JP, Baynam G, Bello SM, Berk M, Bertram H, Bishop S, Blau H, Bodenstein DF, Botas P, Boztug K, Čady J, Callahan TJ, Cameron R, Carbon SJ, Castellanos F, Caufield JH, Chan LE, Chute CG, Cruz-Rojo J, Dahan-Oliel N, Davids JR, de Dieuleveult M, de Souza V, de Vries BBA, de Vries E, DePaulo JR, Derfalvi B, Dhombres F, Diaz-Byrd C, Dingemans AJM, Donadille B, Duyzend M, Elfeky R, Essaid S, Fabrizzi C, Fico G, Firth HV, Freudenberg-Hua Y, Fullerton JM, Gabriel DL, Gilmour K, Giordano J, Goes FS, Moses RG, Green I, Griese M, Groza T, Gu W, Guthrie J, Gyori B, Hamosh A, Hanauer M, Hanušová K, He YO, Hegde H, Helbig I, Holasová K, Hoyt CT, Huang S, Hurwitz E, Jacobsen JOB, Jiang X, Joseph L, Keramatian K, King B, Knoflach K, Koolen DA, Kraus ML, Kroll C, Kusters M, Ladewig MS, Lagorce D, Lai MC, Lapunzina P, Laraway B, Lewis-Smith D, Li X, Lucano C, Majd M, Marazita ML, Martinez-Glez V, McHenry TH, McInnis MG, McMurry JA, Mihulová M, Millett CE, Mitchell PB, Moslerová V, Narutomi K, Nematollahi S, Nevado J, Nierenberg AA, Čajbiková NN, Nurnberger JI Jr, Ogishima S, Olson D, Ortiz A, Pachajoa H, Perez de Nanclares G, Peters A, Putman T, Rapp CK, Rath A, Reese J, Rekerle L, Roberts AM, Roy S, Sanders SJ, Schuetz C, Schulte EC, Schulze TG, Schwarz M, Scott K, Seelow D, Seitz B, Shen Y, Similuk MN, Simon ES, Singh B, Smedley D, Smith CL, Smolinsky JT, Sperry S, Stafford E, Stefancsik R, Steinhaus R, Strawbridge R, Sundaramurthi JC, Talapova P, Tenorio Castano JA, Tesner P, Thomas RH, Thurm A, Turnovec M, van Gijn ME, Vasilevsky NA, Vlčková M, Walden A, Wang K, Wapner R, Ware JS, Wiafe AA, Wiafe SA, Wiggins LD, Williams AE, Wu C, Wyrwoll MJ, Xiong H, Yalin N, Yamamoto Y, Yatham LN, Yocum AK, Young AH, Yüksel Z, Zandi PP, Zankl A, Zarante I, Zvolský M, Toro S, Carmody LC, Harris NL, Munoz-Torres MC, Danis D, Mungall CJ, Köhler S, Haendel MA, Robinson PN. The Human Phenotype Ontology in 2024: phenotypes around the world. Nucleic Acids Res. 2024 Jan 5;52(D1):D1333-D1346. doi: 10.1093/nar/gkad1005. PMID: 37953324; PMCID: PMC10767975.

Garneau-Gaudreault L-A, Gagnon M, Boucher N, Croteau C, Laberge M, Dahan-Oliel N, Duchesne L. Chapitre 3: L’expérience scolaire de personnes ayant une surdité : les facilitateurs et les obstacles qui influencent les apprentissages et l’intégration à l’école. In book: Entre participation sociale, inclusion et littératie (pp.59-82). December 2024. DOI:10.1515/9782760560666-008

Hamdy R, Marwan Y, Abu Dalu K, Dahan-Oliel N. Arthrogryposis. In book: Pediatric Lower Limb Deformities (pp.517-536). August 2024 DOI:10.1007/978-3-031-55767-5_25

2024

Taqi D, Nematollahi S, Lemin S, Rauch F, Hamdy R, Dahan-Oliel N. Arthrogryposis multiplex congenita: dental and maxillofacial phenotype - A scoping review. Bone. 2024 Feb;179:116955. doi: 10.1016/j.bone.2023.116955. Epub 2023 Nov 10. PMID: 37951521

Cachecho S, Fąfara A, Lacombe F, Bussières A, Dahan-Oliel N. (2024). Current rehabilitation practice for the evaluation and treatment of children with arthrogryposis: an international survey. Disability and rehabilitation. 46(1): 96–104.

Tsimicalis A, Stinson J, Thorstad K, Rauch F, Hamdy R, Chougui K, Addab S, Palomo T, Bernstein M, Dahan-Oliel N, Veilleux LN, Massochin Nunes Pinto L, Passos Dos Santos R. The Design, Development, and Usability Testing of an eHealth Program for Youths With Osteogenesis Imperfecta: Protocol for a 2-Phase User-Centered Mixed Methods Study. JMIR Res Protoc. 2023 Jun 23;12:e47524. doi: 10.2196/47524. PMID: 37351933; PMCID: PMC10337436.

Gagnon M, Marino Merlo G, Dahan-Oliel N, Veilleux LN. (2023). Measurement Repeatability and Reproducibility of Virtual Goniometry of a Set of Acquired Images in Youths with Arthrogryposis Multiplex Congenita. J Musculoskelet Neuronal Interact.23(2): 175-188

Elekanachi RU, Shikako K, Snider L, Dahan-Oliel N. A Portrait of the Rights of Children with Disabilities in Nigeria: A Policy Review. Int J Environ Res Public Health. 2023 Oct 30;20(21):6996. doi: 10.3390/ijerph20216996. PMID: 37947554; PMCID: PMC10650762.

Elfassy C, Wagner L, Higgins J, Montpetit K, Snider L, Dahan-Oliel N. Stakeholder engagement in the development of an upper extremity outcome measure for children with rare musculoskeletal conditions. Res Involv Engagem. 2023 Aug 8;9(1):64. doi: 10.1186/s40900-023-00479-6. PMID: 37553603; PMCID: PMC10408044.

Chergui S, Al-Ali H, Marwan Y, Abu Dalu K, Dahan-Oliel N, Hamdy RC. (2023). Talectomy for arthrogrypotic foot deformities: A systematic review.Foot Ankle Surg.29(1): 15-21.

2023

Taqi D, Nematollahi S, Lemin S, Rauch F, Hamdy R, Dahan-Oliel N. Arthrogryposis multiplex congenita: dental and maxillofacial phenotype - A scoping review. Bone. 2024 Feb;179:116955. doi: 10.1016/j.bone.2023.116955. Epub 2023 Nov 10. PMID: 37951521

Cachecho S, Fąfara A, Lacombe F, Bussières A, Dahan-Oliel N. (2024). Current rehabilitation practice for the evaluation and treatment of children with arthrogryposis: an international survey. Disability and rehabilitation. 46(1): 96–104.

Tsimicalis A, Stinson J, Thorstad K, Rauch F, Hamdy R, Chougui K, Addab S, Palomo T, Bernstein M, Dahan-Oliel N, Veilleux LN, Massochin Nunes Pinto L, Passos Dos Santos R. The Design, Development, and Usability Testing of an eHealth Program for Youths With Osteogenesis Imperfecta: Protocol for a 2-Phase User-Centered Mixed Methods Study. JMIR Res Protoc. 2023 Jun 23;12:e47524. doi: 10.2196/47524. PMID: 37351933; PMCID: PMC10337436.

Gagnon M, Marino Merlo G, Dahan-Oliel N, Veilleux LN. (2023). Measurement Repeatability and Reproducibility of Virtual Goniometry of a Set of Acquired Images in Youths with Arthrogryposis Multiplex Congenita. J Musculoskelet Neuronal Interact.23(2): 175-188

Elekanachi RU, Shikako K, Snider L, Dahan-Oliel N. A Portrait of the Rights of Children with Disabilities in Nigeria: A Policy Review. Int J Environ Res Public Health. 2023 Oct 30;20(21):6996. doi: 10.3390/ijerph20216996. PMID: 37947554; PMCID: PMC10650762.

Elfassy C, Wagner L, Higgins J, Montpetit K, Snider L, Dahan-Oliel N. Stakeholder engagement in the development of an upper extremity outcome measure for children with rare musculoskeletal conditions. Res Involv Engagem. 2023 Aug 8;9(1):64. doi: 10.1186/s40900-023-00479-6. PMID: 37553603; PMCID: PMC10408044.

Chergui S, Al-Ali H, Marwan Y, Abu Dalu K, Dahan-Oliel N, Hamdy RC. (2023). Talectomy for arthrogrypotic foot deformities: A systematic review. Foot Ankle Surg.29(1): 15-21.


2022

Projects